I have just been thinking that this page needs up-dating. I have been so focused on ONYOM that I haven't given this page enough thought. I have missed blogging here as this is like a diary for me - a place where I record all of those special incidents and share my feelings.
Tália is doing well and crawled four steps forward for the first time ever yesterday. I am over-joyed. We all take moving for granted and just to see her able to move and grab toys makes be so happy.
I also wanted to share this video with you - mum has been doing yoga with Tália and she just loves it so much. Take a look.
Showing posts with label alternative therapies. Show all posts
Showing posts with label alternative therapies. Show all posts
Friday, 18 February 2011
Wednesday, 2 December 2009
Good Days, Bad Days
Well it has been a real roller coaster ride. On Sunday, Talia looked positively awful, she was so chesty and refusing to eat again. I went to bed with a heavy heart fearing another trip to hospital. But then, all of a sudden she woke up looking like a new person. She had more energy and actually ate three good meals. She is on a number of natural and homeopathic remedies and they seem to be helping her lots. I really do see allopathic and natural medicine as complimentary - I have needed both for Talia and it concerns me that people often see them as two sides of the spectrum.
Anyway she had a fab day yesterday too, slowly with more energy - able to sit up again, able to chat a little but then just as I was starting to relax, we had an awful night last night. But what on earth caused her to cry all night long? It really puzzles me. I thought perhaps she had kicked the side of her cot and hurt herself.
Anyway I have just spoken to the physio because after examining her, my gut tells me that her hip has come out of its socket a bit. I have given her an anti-inflammatory and she has eaten so now I am just watching her. If it gets any worse I will take her to the physio to check it out and then perhaps to the Dr.
She has just managed to fall asleep so that is a good sign - she was in too much pain last night to rest. Lets hope that she wakes up feeling better.
My oh my - it is already December - I feel as though the last three weeks have been about survival and getting through them. It is pretty scary to see Talia sick - she is so small and skinny that seeing her lying down and so floppy does thrust me back into reality. I can see just how vulnerable she is. Yet in our own ways, aren't we all?
I am so looking forward to going back to our physio sessions and all the activities - we have so much fun together and we really do enjoy the moment. I have seen Talia improve so much over the last few months. We just need to get over this hurdle and continue with the race.
I have finally received the muscle biopsy report from Barcelona. I spent quite a lot of Monday translating it - dare I admit that I quite enjoyed the challenge of translating the medical jargon? Wow, I learnt so many new terms - it really got my brain ticking. Probably not a bad thing since I have spent most of my time watching and listening to Baby Signing Time!
It appears that nothing abnormal has been picked out yet. I have written to the Drs asking whether this means Tália is not a mito patient. It appears that there is no mito problem in the muscle tissue but what exactly does it mean in real terms. Her lactate seems to be at its lowest level ever. However the mito medication - Q10 and Carnicor do make a big difference to her. Oooh I really don't know - you think you have a dignosis and then you end up back at square one.
Anyway she had a fab day yesterday too, slowly with more energy - able to sit up again, able to chat a little but then just as I was starting to relax, we had an awful night last night. But what on earth caused her to cry all night long? It really puzzles me. I thought perhaps she had kicked the side of her cot and hurt herself.
Anyway I have just spoken to the physio because after examining her, my gut tells me that her hip has come out of its socket a bit. I have given her an anti-inflammatory and she has eaten so now I am just watching her. If it gets any worse I will take her to the physio to check it out and then perhaps to the Dr.
She has just managed to fall asleep so that is a good sign - she was in too much pain last night to rest. Lets hope that she wakes up feeling better.
My oh my - it is already December - I feel as though the last three weeks have been about survival and getting through them. It is pretty scary to see Talia sick - she is so small and skinny that seeing her lying down and so floppy does thrust me back into reality. I can see just how vulnerable she is. Yet in our own ways, aren't we all?
I am so looking forward to going back to our physio sessions and all the activities - we have so much fun together and we really do enjoy the moment. I have seen Talia improve so much over the last few months. We just need to get over this hurdle and continue with the race.
I have finally received the muscle biopsy report from Barcelona. I spent quite a lot of Monday translating it - dare I admit that I quite enjoyed the challenge of translating the medical jargon? Wow, I learnt so many new terms - it really got my brain ticking. Probably not a bad thing since I have spent most of my time watching and listening to Baby Signing Time!
It appears that nothing abnormal has been picked out yet. I have written to the Drs asking whether this means Tália is not a mito patient. It appears that there is no mito problem in the muscle tissue but what exactly does it mean in real terms. Her lactate seems to be at its lowest level ever. However the mito medication - Q10 and Carnicor do make a big difference to her. Oooh I really don't know - you think you have a dignosis and then you end up back at square one.
Tuesday, 7 October 2008
Charged with Energy
Yesterday we went to see Amyn Dahya and his wonderful wife, Karima again. He said that although Tália had had a bad month in terms of her cold virus etc, that overall he saw an improvement in her. She has been looking better again, thank God. Amyn did a meditation and gave us some holy water. I left his place feeling positive.
Today Tália has had a good day so far. She had physio this morning and speech therapy. I tried not to get involved today - I sat in the room and watched but did not do much. Normally I interact a lot with Tália throughout physio; I sing songs, tell stories and feel a little like a juke box!! As of late though we have noticed that she plays up when I'm around, constantly moaning to me or looking for approval. By staying back a bit, she was better able to focus. So actually, it was very relaxing to take a back seat and watch the whole session from afar.
Back at home, Tália has been playing with her Xylophone and bouncing around with her aunty Susan and then at about 3ish she finally decided it was time for a snooze. I can hear her waking up now so I guess its time to sign off!
Today Tália has had a good day so far. She had physio this morning and speech therapy. I tried not to get involved today - I sat in the room and watched but did not do much. Normally I interact a lot with Tália throughout physio; I sing songs, tell stories and feel a little like a juke box!! As of late though we have noticed that she plays up when I'm around, constantly moaning to me or looking for approval. By staying back a bit, she was better able to focus. So actually, it was very relaxing to take a back seat and watch the whole session from afar.
Back at home, Tália has been playing with her Xylophone and bouncing around with her aunty Susan and then at about 3ish she finally decided it was time for a snooze. I can hear her waking up now so I guess its time to sign off!
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