Well its been a long time since I wrote - over a month. Unfortunately my beloved Dad slipped away from this world on the 23rd December. It has been therefore a difficult month - whilst he passed away peacefully and beautifully with the immediate family around him, there is an aching feeling of loss of a loved one -like part of your body has been torn off. We all miss him terribly but also understand that he is at peace - his body was riddled with cancer and as he slipped away, the expression of suffering turned to one of freedom.
Well I miss him terribly as I was his little princess but that is another story for another time and really this blog is to focus on Talia. Now, especially after my Dad's passing, I am determined to do what I can to help her. I want to get her up and walking and I have many goals.
On the 19th January, Andrew and I were in Barcelona, hospital San Juan de Dios to do a muscle biopsy. The muscle biopsy is the final test necessary to find out whether Talia has a mitochondrial disease. As yet we have no diagnosis.
I have to admit that listening to her cry through the biopsy was awful, yet I guess a good sign that she was conscious and has a fighting element in her. Still this time it seemed harder - I guess after everything that's happened with Dad, I feel more sensitive. Despite the latter, I firmly believe that he is our guardian angel and that he is protecting Talia. She was so close to him and many an afternoon she would lie beside him and have a her nap - right up till the day he died. She would curl up to him and fall fast asleep. It was beautiful to watch this bond.
Anyway the specialist in Barcelona seems convinced that Talia has got some mitochondrial problem but we remain unsure until the biopsy comes back. The doctors in Barcelona were amazing - so warm and professional and caring.
Today I have been to Costa del Sol to remove Talia's stiches (about 4 on her leg). They removed them but the wound still looks quite fresh. My best friend Susan came with me and we had to hold Talia down whilst two nurses worked to remove the stiches. My poor baby - I hate to watch her suffer.
Having said that - she has an amazing character and energy and within half an hour was laughing and smiling - she is just so adorable and a real gift.
Anyway more to follow tomorrow - time to get some sleep! I am so exhausted - some of this may not make sense!
