Primordial Dwarfism

Well, I have just seen a Channel 5 documentary, Extraordinary People, Britain's Tiniest Toddlers and my skin is up in goose bumps. This programme aired by Channel 5 is amazing and what's more amazing is that they remind me of Tália. Weirdly too, Kenadie, a dwarf who joins them at a Walking with Giants conference is wearing the same dress as Tália is in the Eye on Spain interview - I am shell shocked, is this a sign? Could Talia have a primary form of dwarfism with mito being a secondary feature?? She seems to fit in with them. Parents of Alex, diagnosed with MOPD 2 have set up an organisation - have a look at it - and please tell me, am I seeing things or does Tália look similar??? See the website - are there more of us with minature kids than we think??? How many people are out there like us but bringing these kids together will give them a social life, a chance to have a community.

Physio with Ana in San Pedro

Have a look at this video - Tália has com eon leaps and bounds and Ana is just fantastic - see her enthusiasm. She makes it so much fun, Tália just cant help but enjoy it.

Hippotherapy - A Video of Tália in Action

Well, although not a brilliant video (a bit shaky at times), it gives you an idea of Talia's first hippotherapy session. Notice how it is already good for her posture and her hypersensibility in her hands.

Hippotherapy - a new approach

Well, as I mentioned Tália is now taking horse riding lessons - or if put in therapy jargon, she is having 'hippotherapy'. The journey there is a bit of a nightmare but once I get there I really appreciate it. The outdoor mountain air, alongside the beautiful horses surrounding us and the loving therapists putting Tali on the horse, it all just makes everything seem so right. Many people have asked me how hippotherapy works and what we aim to achieve. Watch the story of Melody below who took her first steps, thanks to this kind of therapy.

Physio can be a fun Way of Life

One of the things that I have learnt is that physio needs to be built into your way of life and be fun. When it feels like work, Tália cries and doesnt get anywhere but when integrated to play or everyday routines, it just seems to work. For instance, Tália has hypersenitivity in her hands and dislikes holding onto and gripping things. However, take her to the park put her on a see-saw with her sister and she grips onto the metal bar. Put her on a swing and she holds onto the bar as you push her.

We have just had a lovely Easter Week. The weather has been glorious and we have had lots of time outdoors. Its been a long time since we've had a real day off just to have a nice lunch and long walk.

Tomorrow its back to routine again!!

Tália goes Horse Riding

Wow!! What a day - I took Tara and Tália to the Mijas Riding School and huge race course this morning. Ana, our physio strongly recommended that Tália start riding to improve her posture and strengthen her trunk. After a few tears at the start, she seemed to just take to it like a duck to water. It felt great. The instructers were so professional and loving towards Tália. Afterwards she seemed so stimulated and chatty. Tara was fantastic and really helped to make her sister comfortable. We are now going to go there weekly - I know, yet another car journey for me but alas she looks so happy and it seems to suit her temperament! I already feel her posture is better - or maybe I'm imagining it!!!!