Talia at Physiotherapy

Talia trying to talk

We have just had a lovely day out in Casares. But more than anything, it looks as though Talia is trying to talk. Uptil now, she has mainly made squeaky sounds - I have noticed her being more vocal over the last few days but today it seemed really amazing she said Dada and seemed to be trying to string sounds together. I don't want to get too excited but its a miracle. We started her on Co-enzyme Q10 at the beginning of the week and the change in her seems miraculous. I am so excited. She is so much more responsive. After the muscle biopsy she seemed so vulnerable and weak and it is just good to see her reacting and getting back to normal again.

We have moved offices over the last two weeks and I have my own office which I have converted into a stimulation room. I just love my room - it is covered with splashes of colour and nemo stickers and loads of colourful toys. I have a picture of my Dad to give me guidance and chat to Tali.

I am already seeing results from our special room - Talia does not see it as a work room but as a play room - as a room to be with her sisters, a room to have her independence - she can sit in her chair, perch on her toys and it does not matter if she falls due to the soft flooring. I see her as a different child in this room as she comes into her own. I have based the room on one that her physio in San Pedro, Ana Duarte has - Ana is a fabulous physio and she has really inspired me. Tali responds to her so well and even I am constantly suprised by just how much she can get her to do.

Its been a very difficult time for me personally - losing my Dad has been really hard and seeing my mum widowed so younger extremely difficult. However I really think that Dad is with me, looking out for us and checking that Tali is ok.