The first thing I did was to set up an appointment for a follow up blood test. I then got cracking and googled Hypothyroidism and TSH levels. I found out that Talia´s TSH (thyroid stimulating hormone) count was elevated but not exceptionally high. Her T3 and T4 levels were normal. Hypothyroidism is usually charactarised by a rising TSH and low T4. The fact that her T4 was normal put us in a gray area. However I did read that this could be an early indication of future hypothyroidism. I was relieved to see that there was a cure for this condition even though it would mean medication for the rest of her life but compared to the numerous syndromes and illnesses I had looked into - cystic fibrosis, cerebral palsy, it seemed like a nice answer to our concerns. The only think that I got was itchy feet to get going as when untreated Hypothyroidism will affect mental development and cause retardation.
Many of the symptoms seemed to match - physical exhaustion and lethargy, cold hands and feet, poor muscle tone - the only thing that did not square up was that the stereo-type hypothyroid baby is quite chubby and Talia was anything but that. However I knew adults who were skinny and suffered from hypothyroidism.
We did re-test and indeed Talia´s TSH came out even higher - according our lab, the norm was 3.9 and her TSH had gone from 5 to 8.3. My paediatrician immediately referred me to an endocrinologist at the Costa del Sol. I would now be seen under the state system by the head of endocrinology there.
Tália is three years old and weighs only 8.5 kilos and measures 80cm. We do not yet have a diagnosis, although we suspect she has mitochondrial disease. I started this blog whilst pregnant with Tália and on bedrest. Here I share my inner feelings, our journeys, the tests, the mysteries and miracles that face us everyday.
Showing posts with label endocrinology. Show all posts
Showing posts with label endocrinology. Show all posts
Sunday, 10 February 2008
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