I have been so touched by the Mitoaction website - they have provided me with so much support. There are no barriers to their giving - whether you live in the States or Spain, there is a group of people out there ready to help. For anyone with mitochondrial disease or suspected mitochondrial disease, I suggest that they become a member and view this video (see link above) or video at the bottom of the page.
Whether Tália does or does not have mitochondrial disease - my eyes have been opened by how many amazing people there are out there building a network for other families and patients. With Mitochondrial Awareness Week approaching, I hope to help spread the word to others out there for Mitochondrial Disease is often known as the invisible disease.
We see so much about war, disasters etc in the world yet we here so little about these amazing people who dedicate their lives to helping others. Whilst sad to see what people go through, the beauty is that people are really standing together. Mitoaction presents a positive way to live with disabilities. The positiveness is truly inspirational.
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