Well, I guess its time for bed. Here I am just looking at old photos of Talia - I just can't believe how much she has changed. Last few weeks have been tough as she has not been too well and everytime she gets a cold, she becomes floppy and weak. Having said that, she was better today.
I called Barcelona to find out about the muscle biopsy results and they said to call tomorrow to discuss them ... so I'm still in the dark but maybe this time tomorrow I'll know something else....
I just want to say a big thank you to all of you who have written lovely message and for your helpful and informative comments. Maybe someone, somewhere will recognise Talia's symptoms.
Fingers crossed for tomorrow:
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