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Saturday 28 March 2009

A few more answers

Well, yes I know, I left off on Tuesday talking about d-day and then went quiet. Well the reason for this is that I had to absorb the information myself and it would help if I understood the information but when I heard the result, it was like someone chatting to me in Russian. I just could not get to grips with the science. The Dr was very patient reapeating it a few times but I feel a bit of a bimbo really. I was rushing to collect the kids from school and pulled into Carrefour and spoke to her on the hands free with Tali beside me - not ideal for concentration huh??? But if I didn't catch her then, I didn't know when I would as I had to take my girls to dance classes etc. and I reckoned hands free in the car with one topped three in the car!!!

Anyway I will reveal what I know though its not much as nothing official has been released and until the full report and all results are back (about 3 weeks) I wont be able to scour the report and knuckle down to some serious research!!

Basically, Tali has got Mitochondrial Disease, they has found something in the fibres and they are waiting for some respiratory DNA analysis for formal diagnosis but looks like she has some kind of complex. Exactly what the prognosis is - I still dont know.. I will have to wait till the suspicion is confirmed. The Dr however has seen the video of Tali and says that her progress has been exceptional and very positive so I thank you guys for all your prayers and support.

This week has been a tidal wave - waiting with apprehension for the results to finally getting something but not fully understanding. Should I feel relieved or nervous?? Anyway, it is what it is. Thankfully, Tali has had a better week this week and was better at nursery again - when she was ill last week she was so floppy and despondant that I was terrified.

My physio in San Pedro was so happy with Tali's sturdiness on her feet and Tali lifted herself from a sitting to standing position. So I guess that a diagnosis will give me the opportunity to stop searching and just focus on Tali's develpment. My physio wants her to start horse-riding , I am quite scared of horses but i must admit, it sound quite exciting and a bit adventurous and Tali would love to be outdoors like that.

I will keep you all posted when I get the final result. I just pray for a calm week next week. Apart from Tali's results we have been busy at work. We have a business stand for Hamilton Insurance at the Palacio de Congresos, Estepona and it is quite exciting and we launched our new website www.hamilton-homes.com on Thursday.This was a big deal as it is a project that my Dad was meticulously working on - I just wanted to complete the project - I feel that we have forfilled someting.

The work aspect has been fun and helped me through the initial part of the week when I was waiting for the results but I admit I am pretty tired and could do with a little less drama at the moment!!!!!

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